Pure neglect.

Dec 2019 I Walked in to good-hope hospital 3 times had bloods taken each time and each time sent home.4th time I was blue lighted, and still sent home. After much demand to staff I finally got ct scan results stage 4 large anaplastic non Hodgkins 4” by 7” tumour on my spine. I was moved to a short stay ward for 8 days and constantly complained my legs and feet felt jumpy. I was then moved to Richard salt unit for a further 2 days then Xmas day given a ct scan with no warning I was having a catheter inserted I was just about to have Xmas dinner when a nurse shouted i was nil by mouth puzzled by this the next thing 2 patient amberlence people came in and I was been pat slided on to a stretcher and told I was going to the royal orthapedic hospital for a emergency decompression on my spine I didn’t have the operation untill Boxing Day ? After 5 days I was transferred back to good hope for about 4 days, and given 1 round of chemo. Then moved to ward 19 at heartlands hospital during the 5 weeks I was there I was showered once, because they had to hoist me. When ever the doctors came they never mentioned my legs, I was left in a bed for 5 weeks not even being allowed to sit in a chair. When I started asking for a shower or to be allowed to sit in a chair I was told to keep quite. I was on a bed with no air matteress I had developed really bad bed sores that had to be photographed so they could be graded. Because I had a phycartrist fr mc millions come to see me as my mental health was declining he prescribed an antidepressant. When the Dr Lumbley and team next came rd one of the lady doctors as she was walking of said to me these words ( cause you know you will never walk again ) I was never told face to face or what the plan was moving forward. After this I was sleeping a lot and I put this down to depression as nobody was telling me anything, I would wake up not knowing where I was. It turned out I was being administrated Larezapam seditives. The final straw was one morning I kept ringing my buzzer as I needed my pad changed as I had been in it from the night before and had soiled it, I kept ringing my buzzer still 2pm in the afternoon and I had not been changed. I then googled Pals on my phone and called them from my bed a lady from pals was by my bedside in less then an hour, she was fumeing. she arranged for a shower chair for me as they used that as an excuse for not showering me, to add insult to injury the nurses were sitting in it and pushing each other up and down the ward laughing and encouraging the other patients to join in. With in the hour of the lady from pals leaving for the 1st time since being in the royal other paediatric hospital 2 female physiotherapist came to see me with a hoist and hoisted out of bed for the 2nd time in 5wks in to a wheelchair they made sure I was warm and they took me out in to the gardens this was my 1st breath of fresh air in 5wks. Also the lady from pals told me she was getting me moved from there to Annamarie house rehabilitation in a few days she also in that time got me a wheelchair if my own but when I was leaving heartlands they wouldn’t let me take it with me. The relief of being admitted to this new place was overwhelming but in a nice way I felt save and was being spoken to and being heard to in a nice way. From there I continued to have my chemo going to Google hope every 3wks as day patient and at this point I was very poorly due to side effects. Again my needs for physiotheraphy where not being met even tho there was a gym there and a team of physiotherapists, I was told the reason why I wasn’t getting physo was because nobody was prepared to take liability as there was no diagnosis and therefore there hands where tied and in their words someone needs to be held accountable for this injustice. I stayed at annamarie house for at total of 3 and a half months and kept comfortable especially while having strong chemotherapy and throughout being there. In total by this time I’d been hospitalised for 6 + months. I’m still under a different consultant Dr Jodpunturey at good hope hemotholigy dpt. I’m now wheelchair bound and paralysed from the waist down and unable to wait bare hence I carnt even wear shoes as my feet have dropped. I feel really really let down by what’s happend as nobody has never explained whey I ended up like this or ever offered a plan going forward. Even when I’ve asked my consultant about physio he says it’s not his department ? I’m sorry my write has been long but I never want anyone to go through what I’ve been through, I feel like I’ve been left just to get on with it and haven’t left my house in 3 years ? I whish there was someone or something out there like a outlet ie day centre I could attend just to socialise with people. Thank you for taking time to read this. Ann.